Rowe's Research Runners exists to: increase funding, raise awareness, and facilitate connections for people with ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) dysautonomia, and now including long COVID.
What is ME/CFS and Dysautonomia?
ME/CFS is a serious, chronic, complex, multisystem disease that often can profoundly limit the health and activities of affected patients. It is characterized by profound fatigue, unrefreshing sleep, difficulty thinking and concentrating, intolerance of upright posture, and worsening of symptoms after a variety of forms of activity.
Dysautonomia is an umbrella term used to describe various conditions that cause a malfunction of the Autonomic Nervous System, usually involving circulatory disorders like postural tachycardia syndrome (POTS) that cause worse symptoms when people are sitting or standing for long periods of time.
Who is Dr. Rowe?
Dr. Rowe is a world-renowned doctor in treating ME/CFS, dysautonomia, and related illnesses. Dr. Rowe’s commitment to his patients is evidenced by his relentless research, mentoring, and teaching. His compassion and intelligence simultaneously put his patients at ease and enable him to provide them with the best possible care.
Money raised by RRR goes toward essential ground-breaking research for the nearly 3.5 million people who suffer from these often misunderstood and underfunded illnesses.
Consider Emily’s Story:
Emily Steffensmeier came down with a mysterious "flu-like” illness only one month after graduating college. Rather than pursue a career as a nurse practitioner, marry, and have children, Emily has now lived with ME/CFS and dysautonomia for 17 years—15 of which she spent bedridden or homebound.
After six years of searching, and almost 100 doctors later, Emily found Dr. Peter Rowe at Johns Hopkins Children’s Center. She has now been his patient for 15 years. Thanks to Dr. Rowe, Emily’s quality of life improved dramatically.
Dr. Rowe and Emily
Emily is now dedicated to continuing Dr. Rowe’s legacy, hoping her story and work will lead to greater access to comprehensive treatment options, more practitioners, and a broader acceptance and understanding of these illnesses.
Your money will go directly to Dr. Rowe’s research and will give hope to people like Emily who have, for so long, often gone without.